Katie has been nursing for over 20 years, with her career and education focused around tissue viability.
She is a mum of two boys. Unexpectedly, when her second son was born, it was immediately apparent to her that he had epidermolysis bullosa (EB), having attended some educational sessions about EB at work.
Following biopsies, it was discovered that he had an autosomal dominant spontaneous genetic mutation – EB simplex generalised severe. Katie managed deep wounds and widespread blisters covering 70–80% of his body.
The condition is exceptionally hard and complex to manage, along with all the associated factors which come with having severe EB. In her presentation, Katie wishes to give an insight into the condition and how to manage extreme skin fragility.
Her son is now nine and they are both ambassadors for DEBRA UK, a charity which works for those living with EB. They hope to raise awareness and funding towards finding any potential treatment or even, one day, a cure for EB.
